Hemophilia Foundation of Michigan

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AGENCY: Hemophilia Foundation of Michigan


ADDRESS: 905 West Eisenhower Circle, Ste. 107
Ann Arbor, MI 48103


TELEPHONE: (800) 482-3041


OFFICE HOURS: 9:00 a.m.-5:00 p.m., Monday-Friday


DIRECTOR: Ivan C. Harner, FACHE


FEES: Fees are based on program and no one is turned away for their inability to pay


ELIGIBILITY: HFM services and programs are offered to those living with a bleeding disorder


APPLICATION PROCEDURE: Call Colleen Joiner, MSW at (800) 482-3041
Or email at Colleen Joiner at colleen@hfmich.org

CAN HELP BE IMMEDIATE: Yes


SUPPORTED BY: Grants, Foundations, Contributions, and Fundraising activities

PROGRAM/SERVICES DESCRIPTION:
Client Services
Direct Assistance – financial and psychosocial support services including insurance and governmental benefits assistance and referral. HFM also offers Support Groups through online chat groups, phone groups and fact to face support groups. Referrals are given to appropriate community resources and the local hemophilia treatment centers (HTC’s). HFM also offers medical tags to those in the community to help identify their condition.

Youth Services
HFM’s hosts the largest and oldest camp in the Nation for those living with a bleeding disorder. Camp Bold Eagle and Eagle Outpost are one-week summer camp programs, which allow children to participate in normal summer activities along with providing education on their bleeding disorders. Many campers continue to participate in our summer program through our Counselor-In-Training (CIT) program and leadership development to become camp staff and role models for those in the community. Teen Retreat is another way for youth to develop leadership skills and learn to be role models for others. MYLIFE is a specialty program that offers a yearlong intensive program on role model, leadership, team building and self-motivation. MYLIFE works closely in planning and implementing the Teen Newsletter and the youth programming of SpringFest and the Holiday Party. HFM also offers scholarships to those continuing their education and are living with a bleeding disorder.

Outreach and Education Services
HFM has a comprehensive Library on site along with regular provision of patient and provider educational materials. Six newsletters, two magazines, one annual report are put out each year to pass information throughout the state. HFM also hosts an annual consumer conference called SpringFest that provides educational sessions on current issues. HFM offers a welcome program for new members and outreach and education to women (a minority group within the community). HFM participates in several health fairs and other public displays.

HIV-Specific Direct Services
For those who are living with a bleeding disorder and also have HIV/AIDS, HFM offers several services for those individuals through a HIV/AIDS Retreat, support groups, AIDS Walk, publications, advocacy through the Ricky Ray settlement and education to the community